Tuesday, February 6, 2018

With a great deal of thought and prayer I have decided to get a prescription for Cymbalta which is used to treat pain.  I also am now taking Arthrotec for pain.  It has been six days now on a low dose of Cymbalta and I have been feeling more stable emotionally.  It will take a few more weeks to see the full effects of the drugs.

Being in pain for so long has had a negative affect on my life, so my decision to receive help medically has been a good one.  I’m hoping the dosage can remain low.

My surgeon who is going to do my hip replacement is reviewing all of his patients charts.  He wants to see me some time in March.  I have decided to put off surgery until the fall so I can lose some weight and gain more strength and get my sinus problem taken care of.  My hubby and I have rejoined Weight Watchers online.

My doctor is monitoring me closely on the medications and I feel confident in her abilities.

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January 12, 2008

I am finding answers to my health problems.  I do not have a lump in my lung.  A Pulmonary test shows I may have asthma which is causing me difficult breathing.  I do have a constriction in my lung function.  I have an inhaler which does help with my breathing.  I am also still prescribed by my doctor oxygen when my breathing becomes difficult and headaches become worse.

My headaches which were so severe have become less severe.  I have severely blocked sinuses which have been left untreated for years which is partly the cause of my ill-health.  A senior sister missionary serving in our ward has been coming to drain my lymph system and given me instructions about using essential oils and a diffuser to help drain my sinusis.  She is also giving me reflexology treatments.  This has helped me greatly.  I have been praying for a way to help drain my sinusis since I have been doing all I could do with my doctor and it hadn’t been working.  Then, a few days later the Senior missionary couple came to visit Doral and I, only to discover Sister Manwaring has been trained to help me in using essential oils and massage methods.

I have an appointment in Kelowna in May to see a specialist about my sinuses.

I can see the Lord’s hand in my recovery.  People have been placed in my path who have provided me help.  I continue to pray for help with my withdrawals.  Because I haven’t been sleeping well ( about 3  hours of sleep a night)  I felt impressed to tell my doctor this time and she prescribed a non addictive sleep aid to take only when I have difficulty sleeping after one hour.  Trazodone is an anti-depressant which I have used in the past to help me sleep.  The insomnia is caused by the withdrawals, so after my brain has recovered I will be able to come off the Trazodone.  I may have withdrawals from the Trazodone, but I need to sleep better to help me recover from the other drugs.

I believe I have been receiving guidance from the Holy Ghost in finding ways to lessen or get through the periods of time when withdrawal symptoms become worse.  They come in cycles.    Some of the things I have learned to do is Family History research, indexing records to go onto family search, become a Service Missionary  with family search.  This has been a great blessing in my life in helping me feel useful, and also bless the lives of many people both here on earth and those who have died and waiting for their saving ordinances to be done so they can progress towards exaltation.  Deep breathing exercises, distraction, mindfulness, heat around my neck, crocheting and other hobbies.

I continue to have withdrawal symptoms such as:  ringing ears, anxiety, chorea movements, sweating and chills, confusion, cognitive difficulties, mood swings.  These have been complicated by me having to be on Prednisone which I only have one pill left to take.  We will see if my withdrawal symptoms improve as my body adjust to being off the Prednisone.

 

November 3, 2017

My doctor appointment went well.  Because I have been off the Celexa for almost a month, and my headaches have been getting worse, my doctor thinks the antidepressant had been covering up my headaches in the past and they are now surfacing.  She now isn’t sure if I am having migraines.  Some of the symptoms mimic a migraine while others are different.  The description of Cluster headaches fits my symptoms as well.  For this reason I will be having a brain scan .  I was put on a blood pressure medication which is supposed to help with Cluster headaches.  Today was the first day on it.  The whole day was filled with head pain, but by evening the headaches eased up.   I am still experiencing sensitive hearing and sensitive to light, ringing in the ears and distorted eyesight with the headaches, mental confusion, and anxiety.

The shortness of breath and difficulty taking a breath resulted in a chest x-ray which showed I have a nodule on my lung.  Quite common I guess, and probably benign.  The doctor will be giving me a CT scan occasionally to keep a watch on it.

 

I am not sleeping well, but am getting some rest during the day.  Although I am having these health issues I am thankful that I am getting answers finally.  Doctor Jensen listens to me and takes what I have to say seriously unlike my doctors in the past who treated me like a hysterical mental patient.  I receive a follow-up appointment with he on November 16th.

October 23, 2017

I am starting to find answers to some of the symptoms which have been bothering me.   I am beginning to taper off the Prednisone and it is a good thing.  I was in Emergency last night with severe chorea movements my blood pressure was 200 something ver 100 something, and the worst headache I have ever experienced in my life.  I screamed it was so painful, and it takes a lot to get me to that point.  It turns out I have been having headaches from the Prednisone.  The Migraine headache triggered Chorea Movements, which also caused my neck muscles to contract violently causing tension headache on top of the Migraine. I was given three different shots to stop the Migraine and sent home.  The shots helped, but did not completely take the headache away.  I was given a Benadryl shot to calm the Chorea movements as well.

 

Today, I slept part of the morning and had to lay down again in the afternoon when I felt the migraine try to surface again.  I see silver sparkles during the migraine/ perhaps before.    I didn’t do very much today, just took care of myself and did stress-free enjoyable things like my Familysearch work.  I am planning a make up group which is just for fun, not to sell anything thing time.  I think I will enjoy it better and even learn something in the process.  I have been practicing mindfulness, imagery, and thought stopping to deal with Intruding thoughts.

 

I see my doctor again on 2 September for a follow-up to see what kind of Migraines I may be having and a more permanent solution.  I would like to try a natural product for the Migraines, but haven’t found anything yet.  I am still waiting for the CT scan of my sinuses and the Ultra Sound of my heart, and a pulmonary testing of my lungs to rule out Costocontritis.

 

Isn’t are bodies wonderful!  So complex and interconnected , one system to another in an orderly manner.   Hip replacement surgery is in  seven weeks!!!!    I lost three pounds this week, even on Prednisone which I think is great!

October 2, 2017

Because of the length of time I have been having withdrawals with so many symptoms I did more research into anti depressants.  Celexa is a short acting anti depressant that causes withdrawals only after missing one dose.  I saw my doctor on Friday and I have started Prozac  which is a long-acting anti depressant.  It takes one month before withdrawals can occur.  It will therefore be easier to come off the Prozac than the Celexa.  She has me on 10mg. Prozac with the 10 mg. Celexa for a week, then Prozac 10mg. and 5 mg. Celexa until I am stable, then begin to taper off the Prozac as slowly as needed.

One symptom which has started happening which I thought was withdrawals turns out not to be.  I looked back in my diaries of December 2006 ( since my memory is toast), and discovered I was diagnosed with Temoral Arteritis ( Inflammation of the blood vessels of the brain from the heart leading to the eyes).  If left untreated a person can go blind.

I informed my doctor and she examined me and put me on Prednisone 50mg. for three weeks before tapering off of that.  It is suspected that the withdrawals have caused the Temporal arteritis to recur.  My headache in the temple region has gone after three days of treatment.  It becomes painful for a short time if I accidentally touch my temple region.

I am also tapering off the Hydromorphone .  It was cut in half last week.  I was due to have hip replacement surgery on 23 October 2017, but because I am now on Prednisone ( which compromises your immune system), my surgery was postponed until 7 December, 2017.   That’s ok with me.  I want to feel better before surgery than I do now.

I see my doctor tomorrow morning to discuss the other symptoms I am still having:

Head:  Cold/Hot burning sensations, dizziness, tension headaches

Eyes:  Sore burning, watery, blurred vision, sensitive to light, dry

Ears:  Ringing, burning, sensitive to sound, pain around outside of ear on bone.

Emotional/Mental:  Mood swings, irritability/anger, cognitive difficulties,

Anxiety, Insomnia, Chorea Movements, back pain, muscle pain, sinus pain, memory problems, hot and cold sweats.

Treatments:  Hot or cold packs on my head and neck; Deep breathing relaxation, acupressure self-administered.  http://www.acupressure.org   has some good exercises I have tried which releases the tension in my neck and around my ear.  Distraction using computer games, preparing records for family search indexers; prayer;  and hugs from hubby. 🙂

Over one month after taper

It has been over one month since my last taper and I’m NOT feeling any relief!  Some days it is even worse than week two of the taper.  Tonight is especially wicked.  The cold burning sensation on my skin covering my entire body is almost unbearable.  Chorea movements are still bad as is insomnia, anxiety, mood swings, pseudo emotions.  I felt like my husband was deliberately being mean to me by saying things to hurt me when it wasn’t really true.  I was brought to tears several times today thinking he hated me.  I have been fixing meals for the first time in a number of years and am VERY sensitive to any remarks contrary to my method of cooking or other choices.  It has not been a pleasant experience.  These feelings come in waves throughout the day.  I can feel them coming sometimes.  My thinking becomes very warped, muddled, confused etc.

 

I miss being me!

Another couple of bad days. :(

It has been very difficult today coping with the variety of withdrawal symptoms, especially when they hit all at once.  Today, has been one of the worst I’ve had in a long while.   The smoke in the area is already affecting my sinuses and eyes.  The withdrawals affect them as well, making them sore, watery, sensitive to light.  On top of that I had the intense burning sensation ( Parathesia) on every part of my body and inside my mouth, anxiety surges, very sensitive to sound, ringing  in the ears, muscle and joint pain, many episodes of involuntary muscle movements ( Chorea type Dyskensia).  If that wasn’t enough my emotions went haywire.. anger, depression, crying spell, confusion, memory problems.   I was at the end of my rope trying to think of what I could do for myself to lessen the suffering I was going through and said a prayer.  It wasn’t too long after that Doral asked me what it would do if I put  a cold compact on my head.  At first I poo pooed the suggestion thinking it would cause a larger headache, but then remembered putting cold compress on my eyes in the past which helped take pain away.  I therefore put a cold gel pack over my eyes and almost immediately the Parathesia abated and the pain in my sinuses and eyes lessened.   I am so thankful to Heavenly Father for answering my prayer.

Now, for the good news… I received the phone call for my hip replacement pre surgical screening for my right hip.  I have been looking forward to having my total mobility back, so this is a welcome appointment.  I don’t know yet when my surgery will be.  I had my left hip replaced in January of this year and haven’t fully recovered from that surgery.  It takes a long time for the muscles to recover; up to one year.   I found from last surgery, that the withdrawals abated with all the pain medications.